Improve the Quality of Your Palliative Care Program Through Registry Participation
Robust palliative care data provides insights and supports advancements in care for those with serious illness. The PCQC Registry collects and collates your data, generates reports, and provides opportunities for action.
PCQC offers three ways to participate in our Registry. We encourage you to participate in all three.
Basic Membership: Create and maintain a Program Profile
Cost: Free
Description: Annually provide basic information about your palliative care program.
If your program is new to the PCQC Registry and would like to become a Basic Member, please contact PCQC Member Services for next steps.
Advanced Membership: Annual Program Surveys and Reports
Cost: Free
Description: Annually, palliative care programs submit data about their program reflecting the previous year. This survey provides actionable data that programs can use to secure, expand and retain resources for delivery of high-quality palliative care, and to support the establishment of new palliative care programs where none exist. Data is collected on all service settings across the continuum of care, including hospital, long-term care, office/clinic, and home-based palliative care. For programs that previously contributed data to the former National Palliative Care Registry™, your historical data is saved in the PCQC registry and you should now complete your annual surveys within the PCQC registry.
During 2024 you will report on 2023 data. The 2023 Annual Program Survey will be available in the Third Quarter 2024. The survey questions are available for your review. Questions for the Annual Program Survey will be available prior to the opening of the survey. You can learn more about the Annual Program Survey, including reviewing the 2022 survey questions (data dictionoaries) on the Annual Program Survey page.
Premium Membership: Clinical Data Capture and Reports
Cost: Cost will vary depending on the type and size of your program. Reach out to PCQC via info@palliativequality.org to schedule a meeting to discuss a quote for your program.
Description: The PCQC Clinical Data Capture and Reports is a collection of standardized data that include clinical outcomes for each patient. Members can generate reports to monitor their program and to benchmark outcomes to peer groups. Premium Members also have access to monthly programming through the Premium Member Collaborative.
For those interested in participating in the registry as a Premium Member, which includes clinical data capture, you will need to complete legal documents to allow for data sharing. PCQC has the following official contracting documents available:
*Exhibit A will be completed after a conversation with PCQC. When you are ready to sign up, please download, review with your legal team, and return to info@palliativequality.org.
|
Features |
Basic: Annual Program Profile |
Advanced: Annual Program Survey and Reports |
Premium: Clinical Data Capture and Reports |
|---|---|---|---|
|
Cost |
Free |
Free |
Yes |
|
Receive Updates from PCQC |
Yes |
Yes |
Yes |
|
Highlighted listing on GetPalliativeCare.org |
Yes | Yes | Yes |
|
Inivations to Participate in select educational programs |
Yes |
Yes |
Yes |
|
Reports that compare your program to peer programs on metrics like staffing and penetration |
Yes |
Yes | |
|
Reports that compare your program to peer programs on metrics like patient outcomes |
Yes |
||
|
Opportunity to participate in member exclusive educational and networking programs |
Yes |
||
|
Opportunity for EHR integration |
Yes |
Benefits of Participation
Reasons to join the PCQC:
- Improve patient care through rapid cycle quality improvement
- Explore EHR integration
- Empower palliative care service providers to demonstrate their value to health systems
- Assure the quality of palliative care services
- Create a national peer network and collaborative quality projects
- Design, test and implement quality measures that matter for seriously ill patients
- Collect and report data on quality measures in value-based purchasing agreements with payers
- Create a learning health system for the seriously ill
- Ensure that data from different providers measures the same thing – using a standardized approach to increase confidence, consistency, reliability, and benchmarking capabilities
- Improve palliative care research efforts
What is the fee associated with becoming a PCQC member?
Membership with access to program-level data reporting: Free
Participation in Basic and Advanced Membership (structures and processes) is available free of charge for all palliative care organizations.
Membership with access to program-level AND patient-level data reporting: the fee to participate in Premium Membership is based upon program size and volume. Discounts apply for bulk purchases and pediatric and safety net programs. If you are curious about the specific cost for your program, reach out directly to PCQC at info@palliativequality.org for a price quote.