Palliative Care and Coronavirus Reporting Registry

The PCQC–COVID19 Case Report

The Palliative Care Quality Collaborative (PCQC) houses the new, unified quality registry for specialty palliative care. Its mission is to provide palliative care clinicians and programs with actionable information to improve quality of palliative care delivery.

In the wake of the COVID-19 crisis, there has been a tremendous amount of uncertainty facing clinicians and administrators throughout our field. In response, the PCQC has developed a short case report form to collate experiences of palliative care clinicians in caring for COVID-19 positive, PUI (Person Under Investigation), and recovered patients. These experiences will be shared with the palliative care community to foster clarity in the field through continuous learning. The case report is for both adult and pediatric palliative care.

File a Case Report

With the collaboration of our entire palliative care community, we are defining the impact of COVID-19 on patients within palliative care, and how COVID-19 (suspected and confirmed) impacts palliative care.  

Key points

  1. The PCQC – COVID19 Registry is an international effort—we are counting on robust participation and collaboration.
  2. Participation is free and open to all palliative care programs across the continuum of care.
  3. We will provide regularly updated summary information about the reported cases, so the entire palliative care community has access to this information in a timely manner.
  4. The registry contains only de-identified data, per HIPAA Safe Harbor De-Identification standards. The registry does not contain any patient or institutional identifiers.
  5. The storage and analysis of de-identified data do not constitute human subjects research as defined under federal regulations [45 CFR 46.102 and 21 CFR 56.102] and does not require IRB approval. Please check with your local IRB regarding use at your local institution.

We invite your contribution to this voluntary reporting system. Through broad-scale participation and collaboration, we can answer very pressing questions for our palliative care patients and their caregivers.

File a Case Report

Data Collection Forms

View a pdf of the PCQC COVID-19 Case Report for community-based and hospital-based palliative care.

If you would prefer to submit data using an Excel template instead of the online survey, you can complete the Excel template and email it to This email address is being protected from spambots. You need JavaScript enabled to view it. 

If you have any questions, please read our Frequently Asked Questions (FAQ) page or fill out our online form.

Sincerely,

The Palliative Care Quality Collaborative

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