Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM Co-Leads National Pediatric Palliative Care Task Force
May 2021:
The National Coalition for Hospice and Palliative Care (The Coalition) launched a National Pediatric Palliative Care Task Force in 2020. The task force is co-lead by Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, a member of the PCQC Board of Directors.
The task force will focus on three key priority areas and established workgroups to implement action plans. The three priority areas are 1) Payment and finance, 2) Needs assessment, and 3) Knowledge and awareness. Over the next year, the task force will focus on these domains with the ultimate goals to enhance and increase children's access to high-quality pediatric palliative care services.
This work is funded by the Cameron and Hayden Lord Foundation and the Cambia Health Foundation.
The Task Force has released their inaugural newsletter (PPC Now). The PPC NOW e-newsletter highlights updates on Task Force activities and PPC advocacy and educational opportunities. It also features wisdom and insights from families and PPC providers on the front lines through a unique partnership with the Courageous Parents Network. If you are interested in subscribing to their newsletter click here.
To learn more about the National Pediatric Palliative Care Taskforce, visit the National Coalition's website.