The Palliative Care Quality Collaborative (PCQC) is excited to announce the launch of the PCQC Registry

April 2021:

The Palliative Care Quality Collaborative (PCQC) is excited to announce the launch of the PCQC Registry, the first unified, national registry to measure quality in palliative care. 

In partnership with CAPC, NPCRC, and AAHPM, PCQC has worked tirelessly to combine the clinical data entry surveys of the Palliative Care Quality Network (PCQN) and Global Palliative Care Quality Alliance (GPCQA) with the Annual Program Survey previously hosted by the National Palliative Care Registry, and to align to best practice standards. 

The PCQC Registry welcomed its first Premium Members in February in 2021, allowing members to input clinical data into the Registry.  Additionally, the PCQC Registry opened to Basic and Advanced Members in March of 2021, allowing members to input program data into the Registry. 

PCQC is currently welcoming new members and offers palliative care programs three levels of membership options to best fit program need. Visit the PCQC website for additional information on the different levels of PCQC membership. In addition to Registry access, PCQC will begin offering member-exclusive quality improvement and educational opportunities in late 2021. 

What is the PCQC Registry?

The PCQC Registry is a tool to collect standardized structure, process, and outcome data about palliative care programs and their patients. The goal is to improve patient care by providing programs with actionable data that they can use for quality improvement and program development.

Reasons to Join:

  • Improve patient care through rapid cycle quality improvement
  • Implement cost effective program and clinical data collection
  • Standardize data collection across palliative care
  • Assure the quality of palliative care services
  • Justify payment for value
  • Track your performance over time, benchmark against peers, and participate in quality improvement offerings. 
  • Access actionable reports.
  • List your program on CAPC’s Provider Directory on getpalliativecare.org for patients, families, and referring providers.
  • Join a national peer network and participate in collaborative quality improvement projects.

Ways to Participate:

There are three different ways to participate in the PCQC Registry: Basic Membership, Advanced Membership, and Premium Membership. PCQC offers both free and paid membership options.

Features

Basic: Annual Program Profile

Advanced: Annual Program Survey and Reports 

Premium: Clinical Data Capture and Reports

Cost

Free

Free

Yes

Listing on GetPalliativeCare.org

Yes

Yes

Yes

Highlighted listing on GetPalliativeCare.org

 

Yes 

Yes

Reports that compare your program to peer programs on metrics like staffing and penetration

 

Yes

Yes

Reports that compare your program to peer programs on metrics like patient outcomes 

   

Yes

Opportunity to participate in Quality Improvement (QI) Projects

   

Yes

Opportunity for EHR integration 

   

Yes

Advanced Members are being asked to complete their Annual Program Surveys for 2020 by July 15, 2021.

Reports are being introduced in a phased approach. The measures and metrics that have been outlined for PCQC’s reports are comprehensive and far reaching. PCQC plans to make periodic additions to the reports to uphold best practice standards, and to capture the varied interests of the field. Additionally, modifications will be made to existing reports to improve the usability and reliability, such as adding additional benchmarking capabilities.

To learn more about the various membership levels visit the “Join” page

Founding Partners:

PCQC was created through a partnership between the American Academy of Hospice and Palliative Medicine (AAHPM), the Center to Advance Palliative Care (CAPC), the National Palliative Care Research Center (NPCRC), the Palliative Care Quality Network (PCQN), the Global Palliative Care Quality Alliance (GPCQA), and Four Seasons with generous funding provided by the Gordon and Betty Moore Foundation and the Cambia Health Foundation.

Reach out to PCQC with questions at This email address is being protected from spambots. You need JavaScript enabled to view it. or Toll-free at 833-903-2201.

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